Eligibility

  • All patients including minors with a diagnosis of PNH or a detected PNH clone are eligible to participate in the PNH Registry.
  • A detected PNH clone is defined by the identification of GPI-deficient granulocytes, GPI-deficient erythrocytes, or both.
    A minimum number of PNH cells at a level of 0.01% is required.
  • Patients must sign a written informed consent form. Patients under the age of 18 years must have parental/legal guardian consent.

Familly

The PNH Registry will allow access to critical, global, real-world information, helping you provide optimal care to patients with this rare disease.