• All physicians (haematologists, oncologists….) following and/or treating patients with PNH, may participate in the PNH Registry.

Objectives of the PNH Registry:
  • To understand the variability, progression and natural history of the disease
  • To increase PNH knowledge in the medical community and patient/potential patient population
  • To evaluate treatment modalities that may benefit patients with PNH
  • To collect and evaluate safety data in treated patients.
  • To foster an international community of medical experts
  • To improve medical management of patients with PNH through the real-world data generation

Contribution to the PNH Registry

  • The PNH Registry is a resource for you and your staff. Share experiences, add to the growing body of knowledge and help to improve outcomes for patients with PNH.