TM

Eligibility

  • Patients of any age, with PNH with a detected proportion of PNH cells (PNH clone) of at least 1%, whether treated or not.
  • Ability to comprehend and sign consent or able to give assent to have data entered in the PNH Registry.
  • Patients currently enrolled in an interventional clinical study for treatment of PNH cannot be enrolled in the PNH Registry while enrolled/participating in the clinical study for PNH therapy.

 

Familly

The PNH Registry will provide critical, real world information, helping you provide optimal care to patients with this rare disease.

Registry sponsored by Alexion Pharmaceuticals, Inc.
M/GL/UNB-P/0004 October 2022 PNHEU12005