• Patients of any age, with PNH with a detected proportion of PNH cells (PNH clone) of at least 1%, whether treated or not.
  • Ability to comprehend and sign consent or able to give assent to have data entered in the PNH Registry.
  • Patients currently enrolled in an interventional clinical study for treatment of PNH cannot be enrolled in the PNH Registry while enrolled/participating in the clinical study for PNH therapy.



The PNH Registry will provide critical, real world information, helping you provide optimal care to patients with this rare disease.